So..... there have been a lot of vague updates about kel and I have enough time to finally post for everyone to follow along.
About a month ago Kel was complaining of chest/rib pain. After a few days and a prompt care visit kel went to the ER thinking he had cracked ribs. There were no cracks on his xrays but some fluid build up in his lung and abnormalties with his diaphragm were visible. He came home to rest. After the weekend he went back to the ER and xrays showed no changed so he was sent home until his follow up appointment later in the week. After 4days of pain and immobility he had his follow up. That is when he was admitted.
Then the hospital sent him to ct scan and during the scan a chest tube was put in immediately and over a liter was drained right there. He had a very painful chest tube for a week to suction out all the fluid. It was determined that he had some how developed a wierd strand of pneumonia that led to fluid build up in the lung. The fluid was pushing on his lungs, ribs and most of his diaphragm was paralyzed. Over the week at home before it was drained all the pressure led to some complications that made it impossible to drain the remaining fluid from his lung.
After one week of a chest tube we had to talk either surgery to remove all the infection and infected area or we could try at home iv antbiotics for 4-6 weeks to help heal the issues and minimize surgical needs. So kel was sent home and I took over his care for a week.
He started off great but after the first few days started declining and fevers were retuning. So on day 8 at home his fever spiked and he was brought back to the hospital. He was readmitted and we once again discussed surgery to remove all aftected areas of the lung and surrounding areas.
Another chest tube was put in and scans showed the fluid had moved around but was regnerating due to the pneumonia infection. The placement plus accumulated scar tissue have had it impossible for antibiotics to get in and kill the bacteria. The hope was that the chest tube #2 would drain out all the ick.
It didnt. After 5 days of heavy meds and suction nothing new had come out. Scans showed that fluid was rebuilding and pneumonia wasnt changing. At this point it has been a whole month of battles for him and his body just cant fight back. We have been seeing multiple specialists for the pneumonia and more for his lungs plus surgical consultation.
The placement of everything (immediately between his lobes on his left lung) make it tricky. For a non lung surgeon there is severe risk of having to remove one or both lobes. So we were aksed if moving to st. Louis to see a top rated lung surgeon was an option. There is really No other way to get everything out. So kel has been transfered to st. Louis for surgery. The sooner it is done the less likely any of his lung will be removed.
There are a lot of unknowns at this point. Liquid obscures xrays and makes it impossible to know for sure what is up. So surgery could go super well and be an easy removal of all the scar tissue and drainage of the infection, but there could be so much more than we can see. The goal is to keep his lung in tact and fully functioning.
So, I am in st. Louis staying with my little sister to be with kel. Cecelia is being taken care of by my big sister and mom. My other sister is watching our house. I am so blessed that through all of this my family has helped me and kels family has been here to help him.
I know there are so many people who want to help. It is tricky because we can not accept meals due to Cecelia's allergies. She has to have everything prepped with special butter and oils and cant risk any sort of cross contamination.
However kel and I are in a wierd spot. Up until this week I have been able to work full time and handle that, but he hasnt been able to work in over a month. Now I am on a leave to be with him in st. Louis until he is recovering well enough. we are losing all our immediate income. Throw in gas to and from st. Louis and hospitals plus food and the things are tight.
If there Is anything people would like to help with (gas, groceries, target runs) gift cards would be a tremendous blessing and relief for us. My sister and parents are the ones to talk to while I am in st louis. Luckily we have had tremendous luck with Cecelia eating out at Meatheads, monicals, and Olive Garden... but those are the only three places she can safely eat allergy free right now. Anything, even some get well cards for kel and lots and lots of prayers, is a huge help. We have never been in a situation like this and arent sure how to handle it. We need help in lots of little ways, mostly prayer and faith and love.
Our goal is to get kel "back to normal" in every way we can.
For all wondering, myself and baby Gianna (thats her name, Gianna Rose) are doing ok. The dr. Has helped me with ways to manage my stress. The biggest concern for us is
That i keep eating and sleeping regularly. Ive had issues with weight loss (-35lbs) this pregnancy and that affects everything at this point for her growth and my health. But last two weeks i gained back 1 whole pound so we are headed in the right direction finally. We just have to keep me calm long enough to make it to my scheduled c-section in early oct. Labor would be dangerous and risky for both me and Gianna so we are avoiding that at all costs!
Lots of prayers and love please. We just heard that surgery is full for today and they are hoping to sneak kel on this afternoon.
For those who understand medical stuff..... this was EXTREMELY dumbed down. There is so much little details and I cant spell half of them, so please accept my appoligy for how dumbed down it is!


